Integrating User Experience Improves Participant Engagement: A Co-Design Initiative in the Multiple Sclerosis Continuous Quality Improvement (MS-CQI) Improvement Research Collaborative

Integrating User Experience Improves Participant Engagement: A Co-Design Initiative in the Multiple Sclerosis Continuous Quality Improvement (MS-CQI) Improvement Research Collaborative

Integrating User Experience Improves Participant Engagement: A Co-Design Initiative in the Multiple Sclerosis Continuous Quality Improvement (MS-CQI) Improvement Research Collaborative

Background: Here we describe an outreach effort to improve participant engagement in the MS-CQI research collaborative. MS-CQI was a three-year improvement study (2018-2020).

Methods: During Year 3 of the study, a lead team composed of a Person with MS (PwMS), 3 nurses and a project manager conducted outreach calls to participants in the patient-reported outcomes (PRO) component. Results: 685 (98.5% of total) consented PRO participants were contacted. Many reported barriers of limited internet connectivity and accessing the online PRO platform. Most reported a strong sense of personal connection to the study and an interest in helping. Approximately 10% of those not currently participating were willing to re-engage in the study. Approach, materials and scripts were updated and implemented with a greater focus on the participant’s perspective to answer key questions: (1) what barriers and facilitators are influencing study participation; and (2) why does my participation matter?

Conclusion: Using a co-design approach had significant benefits to study management and engagement. Meaningful inclusion of PwMS in the leadership of this effort was critically important.


Presenter/s: Eleanor Bryan (Department of Community & Family Medicine, Geisel School of Medicine at Dartmouth and Dartmouth-Hitchcock-Health, Hanover and Lebanon, NH, United States) , Falguni Mehta (Department of Community & Family Medicine, Dartmouth-Hitchcock-Health, Lebanon, NH, United States) , Brant Oliver (The Dartmouth Institute, USA)